What made you consider those drugs for your eyesight?

Didn’t consider drugs for vision. Spent like 20k on glasses and eye doctors to little success.

Have increased cranial pressure. Makes eyes want go double. 5th or sixth nerve gets weak.

Diamox lowers pressure. Nerves work better, double vision goes away. Prism glasses help if I’m having a bad time.

Other issue was black disc / hallucinations in vision.

Doctors found I had a genetic clotting disorder. Only found due to clots showing up elsewhere in body.

Blood thinners are standard treatment. Aside from double vision all my eye Problems went away in a few days. So basically eye mini strokes.

Everything comes back whenever I try and go off meds.

That's interesting ... I've had vision problems (been partially blind out of one eye for years, and my vision often wants to go double), and no one's been able to pin point a cause. Keep getting hand-wavey responses like "it's just your migraines".

How did you discover you had increased cranial pressure?

Had a spinal tap to check pressure. It was high.

They removed some fluid to Lower pressure. Massive difference in symptoms. Lasted about a year. Diamox lowers pressure now.

Reddit has /r/iih a good place for learning.

What kind of blood thinners are you using?

Pradaxa. I don’t like it, but 3 days without and my right side goes numb. Then vision starts going weird.

Any hints to the mechanism of action for your case? How old are you btw, if you don't mind sharing?

40.

You saw 25 doctors?

He only saw the last doctor.

He saw 12 doctors but had double vision until the end...

clearly.

Hey, let's focus.

Probably about 15. Most multiple times.

Now I may have had less problems if I had taken the baby aspirin like I was supposed to. As that is a mild blood thinner.

Doesn't seem particularly weird to me, I've seen more than that myself for an issue.

Tricky things get dismissed out of hand. Treated as depression.

Oh you have anxiety. Take some anti-depressants.

Umm doctor my entire right side is completely numb.

Doctor: see a neurologist. Umm that’s a 3 month wait.

Neurologist. Take this pill call me in six months. We got about 10 meds to get through before I can start on the good ones.